Buddy Walk 2015

On October 3, the StibbeFam and Princess Claire will be walking in our first-ever Buddy Walk! I am so excited and we are looking forward to this day. We had some awesome shirts made, will have a large group walking, and most importantly we are raising funds to benefit the Down Syndrome Alliance of the Midlands. If you feel moved to do so, a donation to this amazing organization would mean a lot to Claire Perie 🙂  https://www.ds-stride.org/omahabuddywalk/profiles/team/48

The DSAM has been invaluable to us over the past few months. Here is a little more about them:

The Down Syndrome Alliance of the Midlands is committed to connecting those touched by Down syndrome through education, advocacy and support. Our efforts include:

Parent Outreach

  • Newborn Gifts & Parents Guides
  • New Parent Connection Events
  • Moms, D.A.D.S. & Grandparents groups
  • Social events to promote a sense of community

Education Advocacy

  • Down Syndrome Education Series that brings national experts in the fields of Down syndrome education, research, and health care to address Omaha families
  • Self Advocate Scholarship Program
  • Family Stipends for Conferences
  • Down Syndrome Specialist Program in 20 local school districts
  • Events to raise awareness and promote inclusion

Medical Outreach

  • Presentations to OB-GYN, Perinatal, Maternal-Fetal Practices; Labor and Delivery and NICU Departments; Social Workers, Nursing Organizations, and Pediatric Practices
  • Presentations to Metro Hospital Grand Rounds
  • Engagement of nationally reknowned genetisists and researchers for presentations to local health care providers
  • Support materials for MDs, RNs, and prenatally-diagnosed parents
  • Resources on diagnosis of Down syndrome

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One Comment Add yours

  1. Dennis Riley says:

    Claire is beautiful. We too are lucky grandparents of a beautiful little girl with Down’s, her name is Hope and she will always be our family’s little ray of Hope. This past Sunday Hope modeled in the Chicago NADS gala. They then chose to put her picture and my daughter and Hope’s sister Sarah on the channel 7 news that night. We are originally from Omaha and currently live in Chicago, I know my daughter Erin who is an advocate for DS would love to see your posts. She too has been blogging all month on her facebook account, under Erin Komacki. I know you are blessed just like Erin, her husband Paul. big sis Sarah and the entire Riley Family is. Best wishes.
    The Dennis Riley Family

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