As Sam gets older, I find it harder to share about what’s going on with him. Although nothing that I share should embarrass him, it is so innate to want to protect him from everything. There are so many layers to his health, and our life, that it’s daunting to even know where to begin….

As we dive headfirst into the holiday season, I’m reminded how much we have to be grateful for. Cliche, yes. But this time of year will always hold a strange dichotomy between joyfulness and sadness. Nine years ago, on Thanksgiving, we were feeling wonderful about the twins’ prognosis and overjoyed that Sam had seemed to…