Week 2 Quarantine

The reminders of daily life pre-Corona are all around us. The calendar alerts for all the appointments I had to cancel, and all of the activities that, at the time, seemed so overwhelming and complicated. On my fridge hangs an award given to Eli from his 1st grade teacher. A teacher that has been a…

2020-You Are Terrible

This time of year I usually try to form coherent sentences through tears as I type out all the reasons why I love Claire, and Down syndrome, and get everyone ready to wear silly socks. This year, I am trying to form coherent sentences as I sit in Day 4 of “social distancing” due to…

Sam: The Never Ending Story

As Sam gets older, I find it harder to share about what’s going on with him. Although nothing that I share should embarrass him, it is so innate to want to protect him from everything. There are so many layers to his health, and our life, that it’s daunting to even know where to begin….