Sunday, November 25th While I had been packing for nearly a week, we still had a lot to do this morning. Our goal was to leave by 12:00, and I think we left about 2:00. Sounds about right for our family! Saying goodbye to the boys and seeing their hugs to their sister nearly broke…

On Wednesday morning we will place our daughter into the hands of the surgical team. I am equal parts numb and sickened with worry. This wasn’t supposed to happen. Not again. I had convinced myself she would never need surgery.  Why is this so much harder? I can’t sleep, my mind thinks of nothing else, and…

October is Down syndrome Awareness month, and I wanted to share a few (long!) thoughts before it’s over. Down syndrome is complicated for me. This is not the life I imagined for myself, this was meant for my friends who have much kinder hearts. So much about this journey is challenging, fatiguing, heartbreaking, anxiety-producing. There…